Got It!

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

My book: Joys and Sorrows of Living with Adult Autism is now available at publishamerica.com Author Big Bertha Evans Laughing

ISBN:1-4241-7013-3

Posts: 9 · Joined: 20 Mar 2007 Posts: 9 Location: florida

I am curious do you have an interest in learning more about natural nutritional health discoveries to help children and adults with autisum? Very Happy

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

Because of his Autism he is VERY picky when it comes to eating! There are only a few foods that I rotate because he will not try to eat anything else! When you are Autistic you may not like the color, texture,flavor.temperature, it could be anything! People who come up with these so called healthy treatments obviousely have not actually tried them on actual Autistic Human beings! My husband would STARVE rather than eat certain foods! Crying or Very sad

If I ever did try them I would have to Completely control him like a master would a dog! I am not interrested in treating him like an animal. He may be Autistic but he is a human being made in the image of God with feelings just like you and me. He just is not capeable of expressing them in a "normal" way.

Posts: 9 · Joined: 20 Mar 2007 Posts: 9 Location: florida

I have several children with ashbergers which is a form of autisum, as you know, taking natural alternative in a juice form and it is helping with ability to focus and reducing outburst. My son has Down Syndrome and it has helped him greatly. I am confused about your last comment. I understand your situation as I also have a 14 yr old child with challenges.

Only trying to be human and help!

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

I didn't mean to sound harsh and cut down your treatment suggestion. If my husband's mother would have tried this when he was a child it may have worked but he is 38-years-old and pretty set in his ways. I know I am both wife and mother to my autistic husband, but I would rather excercise wifely duties rather than motherly ones. Having him eat or drink certain things would make me feel more like a mother than a wife. He does drive and he has spending money and whenever we first got married I would cook whatever and if he didn't like it he would just go to Mc Donald's. I would have to physically force him into eating or drinking the healthy stuff that may help his Autism. As far as the outbursts, my husband doesn't have them. As a child he used to scream constantly, but praise the Lord he doesn't as an adult. The main problems in his adulthood are anxiety and lack of social skills. Being a grown man he doesn't realize running up to women to give them a hug is not proper. In his eyes he is just being a sweet little boy. It's not his fault he has a man's body. I have written a book on our first 6 years of marriage called Joys and Sorrows of Living with Adult Autism. ISBN# 1-4241-7013-3. My book costs $14.95 plus $3.50 shipping and handling. It is available at publishamerica.com or you can send me a check for $18.45 and I would be more than happy to place the order for you. You see if the Author orders (me) I can get a 30% profit per book or if the book is ordered online I get 8% royalties. So, it is much better for me if I place the order for you. I can have it mailed to your address. My website is www.freewebs.com/bigberthaevans/index.htm and my home address is 106 Mc Cloud Street Berryville, Arkansas 72616 (for you to send your check for $18.45 to if you decide you want a book). There is a very large section about my husband's dealings with nurses in the past. My book is full of experiences that were not good. I would love for every nurse possible to have a copy of this book so they can be better prepared to deal with Autistic individuals.

Posts: 56 · Posted: Wed Mar 21, 2007 5:49 am

I'm sorry Big Bertha, I am just not feeling sincerity from you on this one. You make the comment:

"I would love for every nurse possible to have a copy of this book so they can be better prepared to deal with Autistic individuals"

The rest of that post however is shamelessly greedy. I am all for self promotion and being proud of the fact that you are a published author but your altruistic veneer of "helping others" is completely overshadowed by your desire to get the most financial gain as in :

"I can get a 30% profit per book or if the book is ordered online I get 8% royalties. So, it is much better for me if I place the order for you."

I just don't believe helping is your true intention and if not, then maybe Amazon.com is where you need to be and not on a nurse forum. Even by self admission you state that your book is full of experiences that are "not good", is that helpful to anyone or just a venue for your frustrations?

On the other hand, I have to at least give you credit for not sugar coating it and proudly announcing you are trying to make top dollar for your work. You have bigger kahonas than I do. Best of luck!

D

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

I am far from Greedy! I am POOR! Until I get enough sales to purchase books for my book signings I have to sell them myself in order to have the money to buy any books myself for book signings, it's very hard to sign a book if you don't have one to sign. I need to have book signings to help promote my book, NOT in order to get rich! My book: Joys and Sorrows of living with Adult Autism does have lots of bad experiences with nurses who treated my husband very harshly because of his fear of needles among other things. I included ways that nurses can avoid tramatizing individuals who have needs and accommodations that may be different than your normal patient.

I am a Christian and I have NO desire to get rich! I only want to get on my feet in order to help promote my book. It is my sole desire to try to educate the world about the Autism spectrum. And to share ways I have found (with my husband) to deal with some of the aspects of Autism. If you deal with Autism or Aspergers in any way you can count on finding yourself in some akward situations! My book is full of suggestion for people dealing with Autism. They may not work for the reader because every Autistic individual is different! It is a trial and error approach to find things that will help your situation when dealing with Autism!

I am sorry you saw Greed in my post, please forgive me for the way I explained my desire to make the order myself in order to get the money. Publish America only pays two times a year so I would have to wait all the way until August before I got paid my Royalties of 8%. If I would have waited and not taken orders I probably wouldn't have had enough at 8% to order many copies of my book, if any at all. If the Author makes a sale the author can get up to 40% of the profit, the publisher still makes their share by selling the book. I pray you can see my desire was solely for the promotion of my book. You see God knew I wouldn't have had the money to buy the books so he made a way for me to be able to get them anyway!............God will make a way, when there seems to be no way, He works in ways we cannot see, he will make a way for me! Sure enough he did!!! All things work out for the good of those who love the Lord...I love this verse!

If I did have the finances to order tons of my books believe me I would! I would then send every nurse I could a Free copy!

Posts: 56 · Posted: Thu Mar 29, 2007 10:20 am

My apologies BigBertha...I think I was a little harsh when i sent out that reply to your post. I did post that after a very bad night at work and I was a bit grouchy although I am not going to use that as an excuse for my post.
I should have just kept quiet and not said anything. I don't know your situation at all and i should not have made a snap judgement based on your remarks. When I read your reply to my post, your reasons made a lot of sense, however I am sorry that you had to post that information because of me. That is your personal business and I believe that you didn't share all of that in your original post (the one I replied to) for that reason...IT IS YOUR PERSONAL BUSINESS! I had no right to attack you and make a judgement of you and I sincerely apologize to you.

Keep up you good work and continue to educate everyone out there on Autism and Ashbergers. And again, please accept my apology.

Denise

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

I have no idea how to go about setting up appointments to speak on the subject of "nurses and people with Autism"? If anyone has a clue as to how I would do this please email me at bigberthaevans@yahoo.com and enlighten me!

I really appreciate your appology and my sweet dear Autistic husband is ESTACTIC to know I have a nurse supporting my cause! You should have seen and heard him yelling " I found it!, She appologized! I found it!" He was so happy...he was really dissapointed in the fact that someone had gotten the wrong idea!

I completely understand about your hard day! I wasn't upset about it at all, I just knew you diddn't understand the situation! No hard feelings!
So, you gonna read my book? It is in the Berryville, Ar. library and the Eureka Springs library...so you will be able to do an interlibrary loan on it if you want to.

The whole reson I wrote a book on Adult Autism was because... I wrote down 15 book titles with the author's name and took them to my library to do an interlibrary loan on them because I had already read all of Temple Grandin's books! She is on the opposite end of the Autism Spectrum than my husband! She invented a hug machine, I married one! He is absolutely loveable just like a two year old boy! He likes to "HUG" everyone he likes and needs mothering just like a child expecially when he is in the hospital. He has been in the hospital six times in the six years we have been married! It hurts to be Autistic! Autistic people can feel no pain at all or they can be like my husband and have an oversensitivity to pain! An IV feels like a butcher knife to him! He is deathly afraid of needles and "men" because when he was a little boy men at the Air Force Base hospital tortured him with needles!
In Christian Love
Big Bertha Evans
Author of: Joys and Sorrows of Living with Adult Autism
Please go to my website and check it out! www.freewebs.com/bigberthaevans/index.htm

Posts: 56 · Posted: Fri Mar 30, 2007 8:46 pm

I am glad your husband is happy with my last post. I honestly didn't even think about the fact that i may have hurt him with comments. I don't know why I didn't think that, I guess from drawing assumptions once again...I just thought you wrote the post and he either didn't know about it or didn't understand or something, I don't know what....just another example of my being close-minded I guess. This posting back and forth though has opened my eyes about some things about myself that I hadn't really paid attention to before and I am glad that I am now more enlightened.
As far as your book though, I am currently in St. Louis, MO, so is it even possible to get your book through my library? i am not sure how all of that works? As far as you making appointments to speak on Autism, i honestly don't even know how to go about doing that either. I wonder if you spoke with a local Atism chapter if they would be able to point you in the right direction. I don't know all of what you must go through to publish a book, but i bet someone who you may have been in contact with when writing it may also be able to point you in the right direction of who to speak to about making appointments to speak. Thats my best guess.
Good Luck!

Denise

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

Yes. You can do an interlibrary loan on the book "Joys and Sorrows of Living with Adult Autism. Just go to the librarian and tell her you'd like to do an interlibrary loan on the book by Big Bertha Evans called "Joys and Sorrows of Living with Adult Autism", ISBN# 1-4241-7013-3. They will look it up on the computer and see if it is available in any library in the United States. If it is checked out you may have to wait. If I knew how to attach my manuscript to this e-mail I would and let you read it that way. If you have an e-mail address, I know how to do it that way but you would have to e-mail me so I'd have your e-mail address.

In Christian Love,
Big Bertha Evans

Posts: 56 · Posted: Sat Mar 31, 2007 8:03 am

Thanks! I will try the library option here. I would say send it via email but my computer is in dire need of either a tune up or just needs to get thrown away and I need to buy a laptop. LOL! I am afraid a file that large would put this computer into a meltdown before i have the cash to buy a laptop.
I will let you know if I can't find it in the library. I won't be able to go until mid week as i am working the next 4 12 hour night shifts, so i will let you know after I make it to the library.

Have a great day!

Denise

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

Sorry about the library? I didn't know my book would have to go to state to be PROCESSED! It may be a little while till it is available! Sorry! Wink

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

Dear Nurses,

My dear sweet autistic husband has been looking at the posts continually to see how many people have responded to them but nobody has answered them. There were 2 or 3 people that responded a while back but that was it and nobody has responded to my posts since that. Could you respond to my post to let me know what you thought if it? If you are unable to buy a book you can do an interlibrary loan if you'd like. We have the book available in 3 libraries in our area. My autistic husband has been driving me crazy because he's worried that nobody cares about the book and it is very important to him that it get into the hands of as many nurses at as many hospitals possible to help them understand his end of the autism spectrum so that if he or someone like him on his end of the spectrum walks into any hospital to have a procedure done the nurses will know what to expect ahead of time. My husband has been really dejected that no one has responded. Thank you.

In Christian Love,

Big Bertha Evans

Posts: 35 · Joined: 13 Mar 2007 Posts: 35 Location: Berryville, Ar.

Dear Nurses,

My dear sweet autistic husband needs all female nurses when he goes to the hospital. Men tortured and made fun of him with needles when he was a child. Also he needs mothered and men cannot do this.

All his nurses need to be happy go lucky nurses. They need to be this way naturally to begin with because it will not work for someone who is not this way to just act like they are. He will be able to tell the difference and it will make him very nervous. Serious acting nurses make him nervous and tend to make his scarey experience in the hospital setting even scarier than it would have been. So he needs to have happy go lucky nurses who are naturally happy go lucky from the start and get the same ones everytime he has to go back to the hospital.

He also needs to be able to give hugs to all his nurses. Unlike Temple Grandin who does not like to be touched my Autistic husband craves touch and hugs everybody he likes. Also, when my husband finds nurses he likes he needs to get the same one every time he goes into the hospital.

My husband needs to be completely knocked out for any invasive x-rays or surgerieswith the gas. Even if you are just inserting a catheter in him he needs put out completely with the gas first or he will freak out. It is not good enough that he is just a little woozy. That will not work. He has to be put out. A catheter being inserted feels like having a sword stuck in him, an IV stick feels like being stuck with a butcher knife, and, a blood test feels like being stuck with a steak knife. So you can see how excruciatingly painful this must be for him.

It is better to give him the gas first to begin with but since some hospitals insist on the IV first he needs to have two nurses help him through his procedure. One nurse to do the IV stick on one side of him and another nurse to hold his hand through the stick and then rub the top of his head when he is hyperventillating, screaming, and crying. This is what works best for him so he really needs this.

Thank you for reading this post. It is very important that all nurses in all hospitals understand these needs my autistic husband has before he even goes into the hospital so they know what they can expect from him needs wise before he even enters the hospital to have a procedure done. This way, if they know these things his hospital experience will go much
smoother.

In Christian Love,

Big Bertha Evans